june gloom on 19/9/2009 at 09:04
Quote Posted by Subjective Effect
Re: The FDA. Lets not be hating on these guys because most of the reasons bodes like this do stuff that seems inconvenient to you and I are good. Here in the UK we had a combination painkiller taken off the market because it supposedly is too "useful" for people wanting to commit suicide. Problem is looooads of older people with arthritis find it the
only thing that gives them relief without turning them into doped up couch potatoes. We thought it was ridiculous but its always safety first with these guys, and I can get behind that.
That is a
ridiculous reason to take something off the market. That's like making children's cough syrup illegal because rednecks and thugs like to make meth out of it. (That said, it's not illegal in the states but in many places it's hard to just buy off a shelf.) The point is, those people attempting to commit suicide, if they're serious, will just find another way. In the mean time a bunch of elderly folks and other people with chronic pain who rely on that medicine (or any medicine) for maintaining quality of life are suddenly shafted in the name of safety. Some ideas are stupid and some ideas are evil, but it's rare that you see something that is both stupid
and evil and this is one of those cases, leaving me fistclenchingly fucking angry just thinking about it.
242 on 19/9/2009 at 09:53
So, you can't live more or less normally without the meds at all? I have a heart condition myself, I know all about that nearly permanent fatigued state and loss of motivation too well, but through experience I found out that meds (as well as doctors) couldn't change it essentially in my case, I just learned to live without them.
SubJeff on 19/9/2009 at 09:54
The problem with this particular combination was that the particular opiate in it causes more marked respiratory depression than the other similar preparations.
Here are some links:
(
http://www.timesonline.co.uk/tol/news/uk/article508672.ece)
(
http://news.bbc.co.uk/1/hi/health/4221829.stm)
Its true that people trying to commit suicide will just find another way, but I kind of understand that certain drugs need controlling a bit more because they can be very dangerous. Especially when you see the figures regarding this particular preparation (co-proxamol if you're interested).
Quote Posted by 242
I have a heart condition myself... ...meds... ...I just learned to live without them.
A good idea you think?
june gloom on 19/9/2009 at 09:58
Quote:
Co-proxamol, prescribed to hundreds of thousands of Britons every year, is to be the subject of a staggered withdrawal because of evidence that it can cause death if patients exceed the maximum recommended dosage
by as little as two tablets.I'll agree that such a thing is worthy of recalling. Until you'd clarified I assumed it was a typical histrionic case of "omg people use this pill to off themselves LET'S BAN IT"
That said, the headline in that first link is a shining example of how
not to do a headline.
Fragony on 19/9/2009 at 10:07
Internet is good for venting but horrible for advice. Talk to a pro.
242 on 19/9/2009 at 10:07
Quote Posted by Subjective Effect
A good idea you think?
I don't generalize, all I know is that they didn't change it cardinally nor they helped in an essential way in my case. And of course they weren't going to "fix" it permanently, only operation (probably) can do that.
SubJeff on 19/9/2009 at 10:12
What exactly is the problem?
242 on 19/9/2009 at 10:41
I don't know how it's called in English but it's something about "strings" inside ventricle that prevent normal functioning, it's not something really dangerous for life (for now at least), I don't pass out or something, but it's enough to spoil healthful life because of resulting heart failure and related bad sleep, periodic lack of oxygen etc - all that lead to fatigued state. Healthy people partly can experience how it is if they run 1-3km, just after that it's like my usual state. It's a gained defect in my case.
SubJeff on 19/9/2009 at 11:44
Sounds like something that could lead to failure, if its not already mild failure already. Did your doc think it a good idea for you to stop taking medication?
fett on 19/9/2009 at 13:01
242 - before we found this med, I couldn't bend over to tie my shoes without passing out, got winded just getting up out of a chair. It has to do with a thickening of the ventricle wall muscle, so the heart has trouble pumping when there's even the least bit of adrenaline (bad news at the time for me, the metal drummer). So yeah, as shitty as the side effects are, I'm pretty much bed-ridden without this stuff (Norpace) and if you can imagine, even worse on the other stuff because it lowers my already low blood-pressure.
Sure, I know not to get medical advice from here - I'm really knowledgable about the disease given that I've had it for 10 years and my kids have a 50% chance of having it (though a milder form - nothing shows up in heart screens yet). I've been looking for alternatives to this med for a long time because I was afraid they would stop making it considering how little it is used anymore.
For anyone interested, there's info about the disease (HCM) (
http://www.4hcm.org/hcm/overview/index.1.html) HERE.
