Kolya on 15/9/2017 at 06:22
I'm sorry that you have to live through this, montag. And I hope you get the help.
Vasquez on 15/9/2017 at 07:35
May the phone call bring good news, montag!
But still, 6 hours of week, and the rest is up to you... I'm still recovering from the rough times before mom went to hospital, but she lived with dad – who, to make things more merry, had taken up the booze again – however, they stubbornly refused any professional help (because hey, Vas can do a bit of this and that and we're okay!) until things went so bad they were forced to accept home care services. Thank God for the Scandinavian system, I would've killed either them or myself before long.
But I can't even imagine how incredibly hard things must be for you :( I hope I don't sound like a monster, but I hope the situation clears itself up in a natural way as soon as possible, before you're broken beyond repair.
montag on 17/9/2017 at 03:29
Thanks, Kolya and Vasquez! I got the feeling that, although she couldn't say as much, that the representative who saw us thinks I'm going to qualify for the program. Also this program is local to my county, and is funded by property taxes. I have another meeting on Monday to see someone from a federal program called Passport, which will (if we qualify) effectively cover my little monster with Medicaid. Because Passport is a federal program with a much larger budget, the amount of respite I may receive might go up to as much as 21 hours a week. We shall see! I have to admit to you all, I'm something of a hard-ass, but just thinking of 6 worry-free hours a week is making me tear up a little. The last time I squirted a few was over 20 years ago, when the girl I still think of as my "girlfriend" passed away after an auto accident. But just to give y'all an idea of how twisted I am, when the Pegster was smudging her poop around on the floor, it was all I could do to not die laughing. Her OCD is so strong that while I am telling her to ignore the mess on the floor and just work on cleaning her bum, she is ineffectually pushing a turd around with her fingers and the washcloths I am handing to her. It's funny, but I am more fond of her now than any other time in the past. 10, or even 5 years ago, I you had asked me to take care of her the way I do now, I would have told you to go fuck yourself, now I realize that she has always had some pretty serious mental problems that she never could control. I remember as a child, her father saying something along the lines of "your father made a bad deal when he married your mother, she may be beautiful, (and she was) but there is something very wrong with her." It's probable than if she had been born a few decades after the 30's, that she my have received treatment that could have helped her, but I get it now that she has always been off, so I just deal with her as she is today.
Quote Posted by Vasquez
I hope I don't sound like a monster, but I hope the situation clears itself up in a natural way as soon as possible
No worries, Vasquez, my biggest hope is that she just passes away in her sleep one night. I have her set up in my master-bedroom with all her old furniture, most of it 50 plus years old, and my living room is almost a total recreation of her old one,(including the 27 year old sofa that no one was ever allowed to sit on) so everything is kinda familiar to her. To me, just passing away in the night surrounded by stuff you have known for decades would be the best way to go. Of course, that being said, I still have quite a few pillows, and I'm not afraid to use them!
P.S. the jury is still out on how close I am to being broken beyond repair
scumble on 25/9/2017 at 18:33
I had been feeling a bit crap because I've got a nasty cold. No matter how relatively good my situation might be it's still possible to get fed up. To be fair I'm a quite isolated Autistic single parent who has been struggling to find out why he's constantly knackered, maybe a bit like Yakoob. I just got prescribed some sleeping tablets that were helping and then a virus pounced on me. I'm grateful for family support however, and have been making some effort with the family as they put up with me. I'd been cut off from them effectively for years when I was in above implied marriage.
Harvester - sad to hear what happened, take care of yourself. Sounds like you have good family support
montag - I think you're doing remarkably well with a difficult situation, not sure how you are managing it. Like Vas I'm hoping you get yourself back soon.
I'll send good wishes to everyone else - Vas, VA, Yakoob, Kolya. I'd like to respond to everyone but haven't the energy. I think I've spent half an hour trying to write this much!
Pyrian on 26/9/2017 at 07:18
Get hard flooring. Tile, laminate, wood, whatever. You'll thank me when a stomach bug sweeps through your family and they're vomiting everywhere and your wife can't even approach any of the vomit without also vomiting.
scumble on 26/9/2017 at 13:13
Quote Posted by Pyrian
Get hard flooring. Tile, laminate, wood, whatever. You'll thank me when a stomach bug sweeps through your family and they're vomiting everywhere and your wife can't even approach any of the vomit without also vomiting.
I can see the flooring might help there, as well as nose clips...
montag on 29/9/2017 at 03:22
Forgot where I left off, but here's the latest: I have been approved for respite care through the local program. (called E.S.P. - Elderly Services Program)
On Tuesday, a very nice girl came to the house for three hours, she played lifeguard for the little monster while she took a bath, and then hung out with her. Tomorrow another girl will come for 3 hours and do the same thing. So at the very least, I will have 6 hours a week to do my own thing, which is a big relief. On Monday, I have a phone interview with the federal program (called Passport) if I can get her into that program, she will get up to 21 hours a week of care. That would be great, but more importantly, if she qualifies for Passport, when the time comes (if it does) I would be able to place her in a really nice long-term care facility. This is a place that she has spent time rehabing from her previous injury's, and it is very nice, but very expensive. I've got my fingers crossed, but even if that falls through I have the 6 hours of help each week, which is still huge.
Also, I have hardwood flooring throughout the house, but it is covered with carpet now. Easy enough to pull it all up! As for nose clips, I have clothespins, which should work just as well. Also, I still have the spare pillows. Thanks for the support, you douchlers!
scumble on 29/9/2017 at 10:57
21 hours of help would be a great improvement - I'm wondering what you're living on here if you have to be a carer all the time...
Harvester on 29/9/2017 at 11:45
That's good news, Montag! I hope everything works about and that she gets the care she needs, with you getting some more time for yourself.
Yesterday I got my diploma (I already heard I passed the education several months ago). On my final grade list I was happy to see that the programming teacher awarded me with 10's (like A+, the highest grade) for all the programming parts of the education.
Soon I'll have a testing day at my boss' other company. There's a testing assignment (it's secret, I won't know what it is until that day, so I have no idea as to the difficulty) which I can spend one full day on. If I do a good job, I can become a programmer there for several days a week. Eventually, I'd like to program for 4 days a week. But I think I'll have to start out at 2, and spend the other 2 at my current job until they can find a replacement writer for me. But first I have to nail the assignment... I'm quite nervous about it... I mean not all is lost if I don't do a good job, but then the whole path to becoming a programmer will be delayed.
scumble on 29/9/2017 at 12:14
Fear not, Harvester, a delay isn't the end of the world. It helps not to get stuck in an area that can be demotivating and confusing. I ended up programming in the area of SAP - the big german ERP thing, but so many "technical" people in this area ended up there by accident, or the contractor fees were stupid in 1997 and they'd pay anyone barely competent. There are positive parts to working with SAP, but there are a lot of jobs that are mired in supporting some really awful, genuinely incompetent "software" that really needs to be rebuilt from scratch. The job I have now is also really two people's jobs and I can't do either one properly.
Maybe I'm describing a lot of IT out there. Not necessarily SAP, just that certain skills draw you into jobs that involve programming, but it's basically "support hacking" to keep critical systems that are just about working going. It's like mopping the floor with a leak in the roof you don't have time to fix.